I've got lots of updates as far as kidney stuff goes.
First of all, all the testing is completed now and I am officially on the donor list! I will be on a hold position until March 29, 2009 (one year from the day i started dialysis). After that day I am able to accept offers for a kidney. My family is able to start testing on December 28, 2008 to ensure that their results are really current.
On August 6 Robb and I will be heading to Mayo Clinic in Rochester MN for a second opinion. This is something we just feel we need to do mainly for peace of mind. There are just so many missing pieces to my case and i just dont feel 100% comfortable with anything until i hear from the best of the best. So please keep that in your prayers.
On July 21 I will be having surgery @ St. Mary's in GR. to put a new port in my stomach. It is called a tenkoff and it is a long tube placed into the abdominal cavity for peritoneal dialysis (which can be done at home!!!!) . Peritoneal dialysis is an alternative to hemodialysis (what i am on right now) - fluid is infused into the abdominal cavity, and it pulls toxins out of the body that way instead of using your blood.
So once that heals up good and i get back from Mayo i will be starting home dialysis called peritoneal dialysis or PD. I cant wait for that. I can get my life back. Most people feel much better on PD that they do on hemodialysis. So hopefully that is the case for me too.
I think thats it.
Thank you all for your encouraging comments and of course for your prayers.