Wednesday, July 9, 2008

New Updates

I've got lots of updates as far as kidney stuff goes.

First of all, all the testing is completed now and I am officially on the donor list! I will be on a hold position until March 29, 2009 (one year from the day i started dialysis). After that day I am able to accept offers for a kidney. My family is able to start testing on December 28, 2008 to ensure that their results are really current.

On August 6 Robb and I will be heading to Mayo Clinic in Rochester MN for a second opinion. This is something we just feel we need to do mainly for peace of mind. There are just so many missing pieces to my case and i just dont feel 100% comfortable with anything until i hear from the best of the best. So please keep that in your prayers.

On July 21 I will be having surgery @ St. Mary's in GR. to put a new port in my stomach. It is called a tenkoff and it is a long tube placed into the abdominal cavity for peritoneal dialysis (which can be done at home!!!!) . Peritoneal dialysis is an alternative to hemodialysis (what i am on right now) - fluid is infused into the abdominal cavity, and it pulls toxins out of the body that way instead of using your blood.
So once that heals up good and i get back from Mayo i will be starting home dialysis called peritoneal dialysis or PD. I cant wait for that. I can get my life back. Most people feel much better on PD that they do on hemodialysis. So hopefully that is the case for me too.

I think thats it.

Thank you all for your encouraging comments and of course for your prayers.

11 comments:

Anonymous said...

Thanks for the update. Still praying for you.

The Tranas said...

I've been reading your blog for awhile. One of the nesties is a good friend of mine. I will continue keeping you in my prayers, that you will make the right decisions. Mayo is a great place (we don't live too far from there), and I hope you are able to find some hope and peace.
Hugs & Prayers,
Robin

P.S. I've been through some dark valleys and medical issues of my own, though not the same situation you're going through. Many times I remember thinking, "Why me? Please God, don't make me have to be strong enough to deal with this too, on top of everything else." Even in those dark times, I knew He was there, waiting for me to lean on Him. And, I know it was only by His grace that we made it through those times. I pray the dark valley is soon a distant memory for you!

Anonymous said...

The Mayo Clinic is a great place. I'm a fellow nestie and have followed your story from the beginning. I've been praying for you and Robb from the beginning of your long ordeal. {Hugs & Love}

Tracy Anne said...

Katie - I am praying hard for you and everyone who loves you and supports you. I have been through some awful mess too and my support needed as many prayers as I did at the time.

Keep singing that Ginny Owens song and believe the words Girl! The Lord will sustain you and hold you up when you don't feel like you can go on. I know He has many wonderful blessings for you down the road...

Amanda said...

I'm a fellow nestie and have been reading your blog for a while. I'll continue to send prayers your way.

My sister-in-law works at Mayo Clinic. They will take very good care of you there.

All the best and many prayers!

Holli said...

My mother in law did peri for many years. As long as you are careful to ward off infection, you will like it alot better. I wish you luck!

courtney said...

That is good news, I hope this will be the start of a new turn for the better. Life has got to stop sucking for you at some point. Hang in there and let it all out girl!

sumi said...

Thanks for keeping us in the know. HUGS and prayers...

Julybride_07 said...

Katie you are in my prayers!!! I think about you often! I have faith that God will take of you! I am so sorry again that you are having to go through this! God Bless!

Anonymous said...

http://www.youtube.com/watch?v=uHdcyue0bSw Katie we are praying for you today and everyday

Rachel said...

Katie, We don't know each other but your story is amazing, and your faith seems unshakable. My prayers are with you and your Husband Please keep sharing your life with us...God is using you to bring the unbelievers to him!! God Bless!