Today we had a transplant education class followed by a meeting with the transplant coordinator. And now i am waiting for an ultrasound.
We have been given so much information over the past few days and i will try to tell you what i can about what has been going on.
First of all, i did receive the same diagnosis (IgA nephropathy) as i did in G.R. which is kinda of a bummer but the good news is the doctors here dont see any reason to wait until March for a transplant like the doctor at st. mary's wants to do. Yipee!
So these past few day i have been going thru the evaluation process to get on the donor list here also. It is the same testing as i did in G.R. that took over 2 months to complete and is only taking 2 days here. We have kept very busy. Potentially if we find a live donor with a negative cross match i could receive a transplant with in the next few months here!!!
Also we learned tons of new info on the antibody stuff. The surgeon we saw is a super genius and told us about some new cutting edge treatments and medications that can lower your antibody percentage if my blood is not compatible with any of my possible donors. Great news!! We hope that isnt necessary but just in case it is a huge relief knowing there is an alternative!! Click here for more info on that.
At the end of this month my case will be presented to the transplant committee and hopefully i will get approved and be put on the deceased donor list in Minnesota as well as in Michigan.
If i were to get a transplant here i would stay for 3 weeks and then return after 2-4 months and once a year there after. They will watch me like a hawk to be alert for returning IgA in the new kidney.
Robb will be tested today to see if he is a negative cross match as a donor for me....PLEASE PRAY that he is!!! (negative cross match is good, seems weird) We will get a call on Tuesday for the results. PRAY! PRAY! PRAY!
God is good!!
7 hours ago