More mayo news!

Friday, August 8, 2008

Today we had a transplant education class followed by a meeting with the transplant coordinator. And now i am waiting for an ultrasound.
We have been given so much information over the past few days and i will try to tell you what i can about what has been going on.
First of all, i did receive the same diagnosis (IgA nephropathy) as i did in G.R. which is kinda of a bummer but the good news is the doctors here dont see any reason to wait until March for a transplant like the doctor at st. mary's wants to do. Yipee!
So these past few day i have been going thru the evaluation process to get on the donor list here also. It is the same testing as i did in G.R. that took over 2 months to complete and is only taking 2 days here. We have kept very busy. Potentially if we find a live donor with a negative cross match i could receive a transplant with in the next few months here!!!
Also we learned tons of new info on the antibody stuff. The surgeon we saw is a super genius and told us about some new cutting edge treatments and medications that can lower your antibody percentage if my blood is not compatible with any of my possible donors. Great news!! We hope that isnt necessary but just in case it is a huge relief knowing there is an alternative!! Click here for more info on that.
At the end of this month my case will be presented to the transplant committee and hopefully i will get approved and be put on the deceased donor list in Minnesota as well as in Michigan.
If i were to get a transplant here i would stay for 3 weeks and then return after 2-4 months and once a year there after. They will watch me like a hawk to be alert for returning IgA in the new kidney.
Robb will be tested today to see if he is a negative cross match as a donor for me....PLEASE PRAY that he is!!! (negative cross match is good, seems weird) We will get a call on Tuesday for the results. PRAY! PRAY! PRAY!
God is good!!

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10 Responses to “More mayo news!”

Tracy Anne said...

I am praying Katie! A co-worker of mine from a previous job gave a kidney to her husband to save his life and she said it was the most amazing thing she ever did.

Anonymous said...

Katie,

Thanks for keeping us all posted on whats going on over at Mayo Clinic. Also thanks for the emails and phone calls to me. Sounds like they are taking good care of you. Love to hear all the good news!!! Miss you lots!!!

Mom R.

The VanderZwaag's said...

Praise God for good news!!!! I hope that this process will happen quickly and you will find a donor!!! How awesome is our God?? Enjoy your time at Mayo it sounds like you are enjoying the "mini vacation" (if you want to call it that!!)

Anonymous said...

Deana and I are so happy that you're finally receiving some good news! Keep us posted with any new developments. We missed working side walk sales with you :)

erschans said...

Katie,

This is awesome news!! God is good and works in ways we can not even imagine. We will keep praying for you and Robb and a perfect match!! You guys are amazing...

Emily, Jeff and Brooklyn said...

Yay!!! I am so happy that you are hearing good news out there! How exciting!! We are keeping you in our prayers for a good match!! I cant wait to see you when you get home!

Daddy's Dream ~Mommy's Miracle said...

I think of you daily and pray for divine healing.

BECAUSEICAN said...

I'm praying for you Katie. I'm so glad to hear the good news, and hope that a donor is found for you soon.

judy said...

Katie,

I'm so happy to hear your good news! I'm prayin' for a good future for you! :)

Jenn said...

You are definately in my prayers. Your courage and strength empower me.