So apparently the evaluation testing is a 2-3 appointment process. So todays appointment was quiet the disappointment. We met with the nephrologist (kidney specialist) and he was pretty cut and dry. Kind of a downer dude. We learned a lot of things that we have never been told before, all of which were pretty discouraging. One of his main concerns is that the type of kidney disease I have may not be at its worst stage yet. Meaning he may want to hold off on the transplant and continue with dialysis for awhile until he is sure it wont re-appear a few weeks after a potential transplant. I know that probably sounds like a good thing but it was not what I wanted to hear. I just want to get the transplant asap and get on with "normal life". But he is not sure yet if that is the case. He also had some pretty bad side effects to tell us about.
As far as testing today went, all I had was a basic physical and some X-rays done, no blood work to test for antibodies :( What a let down. I had been preparing myself all weekend for this and it didnt even happen.
We set up the next evaluation appointment for next week wednesday at 9:00 am, this will be an all day appointment (until 3 pm-ish) where I will meet with 2 different surgeons and also get more of the testing done.
So I am in a bad mood now, we really heard NOTHING positive today. It was all bad. Please pray that the next one goes better.
A Picture is worth a Thousand Words
15 hours ago